Three Washington DC Community Advisory Boards for HIV/AIDS Research have written a joint letter addressing sex and gender data collection in HIV/AIDS research. The letter is being posted online for one month so that interested CABS and community members can sign-on. All sign-ons must be received by May 11th. The letter will then be submitted to the Cross-CAB Working Group for NIH NIAID Division of AIDS (DAIDS) funded HIV/AIDS Research.

The three CABs are: The Capital Area Vaccine Effort which serves as the community CAB for the NIH Vaccine Research Center, The Georgetown University Medical Center CAB which is part of the AIDS Clinical Trials Group, and the Washington VA Medical Center CAB, which is part of the International Network for Strategic Initiatives in Global HIV Trials.

Most researchers have come to realize that the term 'sex' refers to birth sex or biological sex; and that the term 'gender' refers to someone's gender identity. This was discussed in detail at the Forum for Collaborative HIV/AIDS Research meeting on Sex and Gender, which I attended back in 2003. I guess I thought that since the meeting was co-sponsored by the CDC and the NIH that we would all be on the same page going forward. Sadly, their continues to be significant discrepancies across networks in how data on sex and gender is collected.

All we are really asking is for DAIDS to get their act together and collect data on sex and gender in a consistent and appropriate manner. This is the right thing to do for everyone, but it is particularly important for the transgender community.

You can find out more by clicking here. I hope that you will join us by signing on to the letter either as an individual or as an organization.